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Research Studies is a compilation of published research articles funded by 大象视频or authored by 大象视频researchers.

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1 to 3 of 3 Research Studies Displayed
Kelly MM, Kieren MQ, Coller RJ
Pediatric open notes: caregiver experiences since the 21st Century Cures Act.
This progress report discusses the impact of the 2020 21st Century Cures Act Final Rule, which mandates that patients and their caregivers have free, secure, and immediate access to their electronic health information, including clinical notes. The authors discuss the results of a study where they surveyed parents who were offered access to clinical notes during their child鈥檚 hospital stay. The benefit most frequently cited by parents was the ability to recapitulate their child鈥檚 care plan, while the most mentioned challenge was confusion caused by misunderstanding note content. Policy implications are discussed that might mitigate challenges including sociodemographic disparities as well as language barriers and limited health literacy. They present technological solutions such as use of AI algorithms to identify and filter confidential, potentially sensitive, information to different tiers of access that would allow adolescents a greater degree of control over their personal information. The use of natural language processing also has the potential to automatically translate medical language into more patient and family-friendly terms.
AHRQ-funded; HS027214; HS027894.
Citation: Kelly MM, Kieren MQ, Coller RJ . Pediatric open notes: caregiver experiences since the 21st Century Cures Act. Acad Pediatr 2024 May-Jun; 24(4):556-58. doi: 10.1016/j.acap.2023.10.001..
Keywords: Children/Adolescents, Caregiving, Electronic Health Records (EHRs), Health Information Technology (HIT), Policy
Ancker JS, Sharko M, Hong M
Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes.
Parents routinely access young children's medical records, but medical societies strongly recommend confidential care during adolescence, and most medical centers restrict parental records access during the teen years. In this study, the investigators sought to assess public opinion about adolescent medical privacy. The investigators concluded that although medical societies recommend confidential care for adolescents, public opinion was largely in favor of parental access.
AHRQ-funded; HS021531.
Citation: Ancker JS, Sharko M, Hong M . Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes. J Am Med Inform Assoc 2018 Dec;25(12):1593-99. doi: 10.1093/jamia/ocy120..
Keywords: Caregiving, Children/Adolescents, Clinician-Patient Communication, Communication, Electronic Health Records (EHRs), Health Information Technology (HIT), Policy
Wisk LE, Gray SH, Gooding HC
I thought you said this was confidential?-Challenges to protecting privacy for teens and young adults.
In this opinion paper, the authors discuss challenges to protecting privacy for teens and young adults. They specifically examine the implications of the dependent coverage expansion provision of the Affordable Care Act.
AHRQ-funded; HS022986.
Citation: Wisk LE, Gray SH, Gooding HC . I thought you said this was confidential?-Challenges to protecting privacy for teens and young adults. JAMA Pediatr 2018 Mar;172(3):209-10. doi: 10.1001/jamapediatrics.2017.3927..
Keywords: Caregiving, Children/Adolescents, Clinician-Patient Communication, Communication, Policy, Young Adults

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