Deafness and Hearing Disorders
Organizations/Information
Directory of Organizations
National Institute on Deafness and Other Communication Disorders
National Institute on Deafness and Other Communication Disorders
Phone: 800-241-1044
TTY: 800-241-1055
Email: nidcdinfo@nidcd.nih.gov
Publications
Deaf or Hard-of-Hearing: Tips for Working with Your Doctor
American Academy of Family Physicians, 2011
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Diabetes
Organizations/Information
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 800-DIABETES (800-342-2383)
Directory of Diabetes Organizations
National Diabetes Information Clearinghouse
National Diabetes Information Clearinghouse
1 Information Way
Bethesda, MD 20892-3560
Phone: 800-860-8747
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Digestive Diseases
Organizations/Information
Directory of Digestive Diseases Organizations for Patients
National Digestive Diseases Information Clearinghouse
National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Phone: 800-891-5389
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Eye Diseases and Disorders
Organizations/Information
National Eye Institute
Information Office
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Eye Health Organizations Database
National Eye Institute
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Fibromyalgia
Organizations/Information
National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
Phone: 714-921-0150
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
Publications
Questions and Answers About Fibromyalgia
National Institute of Arthritis and Musculoskeletal and Skin Disease, 2004
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Heart Disease
Organizations/Information
American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-AHA-USA1 (800-242-8721)
Heart and Vascular Diseases
National Heart, Lung, and Blood Institute
Heart Health & Stroke
National Women's Health Information Center
Heart Health Online
Food and Drug Administration
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
Publications
How to Talk to Your Health Care Provider about Heart Disease and Heart Health
National Women's Health Information Center, 2003
Communicating with Professionals
American Heart Association, 2011
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High Blood Pressure
Organizations/Information
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
Publications
Your Guide to Lowering High Blood Pressure
National Heart, Lung, and Blood Institute
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HIV/AIDS
Organizations/Information
AIDSinfo
U.S. Department of Health and Human Services
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Immunodeficiency Disorders
Publications
Living with Primary Immunodeficiencies, Section 1: What Happens After the Diagnosis
International Patient Organisation for Patients with Primary Immunodeficiencies, 2004
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Infectious Diseases
Organizations/Publications
Publications
National Institute of Allergy and Infectious Diseases, National Institutes of Health
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Kidney Diseases
Organizations/Information
Directory of Kidney and Urologic Diseases Organizations
National Kidney and Urologic Diseases Information Clearinghouse
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
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Lung Diseases
Organizations/Information
Lung Diseases Information
National Heart, Lung, and Blood Institute
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
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Mental Health
Organizations/Information
Health Information
National Institute of Mental Health
Mental Health America!
2001 Beauregard Street, 12th Floor
Alexandria, VA 22311
Phone: 800-969-NMHA (800-969-6642)
Publications
Dialogue for Recovery: "After a Diagnosis"
Mental Health America!
Support
Getting Help: Locate Services
National Institute of Mental Health
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Multiple Sclerosis
Organizations/Information
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Phone: 800-Fight-MS (800-344-4867)
Publications
Living with MS: For People Newly Diagnosed
National Multiple Sclerosis Society, 2004
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Muscular Dystrophy
Organizations/Information
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
Phone: 800-572-1717
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
NINDS Muscular Dystrophy Information Page
National Institute of Neurological Disorders and Stroke
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Neurologic Disorders
Organizations/Information
National Institute of Neurological Disorders and Stroke
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Obesity
Organizations/Information
Aim for a Healthy Weight
National Heart, Lung, and Blood Institute
BMI鈥擝ody Mass Index: Introduction
Centers for Disease Control and Prevention
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
Weight-control Information Network (WIN)
National Institute of Diabetes and Digestive and Kidney Diseases
Support
Overeaters Anonymous
World Service Office
P.O. Box 44020
Rio Rancho, NM 87174-4020
Phone: 505-891-2664
Email: info@oa.org
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Parkinson's Disease
Organizations/Information
National Parkinson Foundation, Inc.
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Phone: 800-327-4545
Publications
Living Well
National Parkinson Foundation, Inc.
What do the Newly Diagnosed Need to Know (video)
National Parkinson Foundation, Inc.
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Rare Diseases and Disorders
Organizations/Information
Office of Rare Diseases Research
National Institutes of Health
National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: 800-999-6673 (voicemail only)
Toll-Free Numbers for Health Information
National Health Information Center
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Skin Diseases
Organizations/Information
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
Return to Specific Diseases and Conditions
Sleep Disorders
Organizations/Information
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
Sleep Disorders Information
National Heart, Lung, and Blood Institute
Return to Specific Diseases and Conditions
Stroke
Organizations/Information
National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112
Phone: 800-787-6537
NINDS Stroke Information Page
National Institute of Neurological Disorders and Stroke
Support
Life After Stroke-Stroke Support Groups: Find a Support Group Near You
American Stroke Association (affiliated with the American Heart Association)
Phone: 888-4-STROKE (888-478-7653)
Return to Specific Diseases and Conditions
Urologic Diseases
Organizations/Information
Directory of Kidney and Urologic Diseases Organizations
National Kidney and Urologic Diseases Information Clearinghouse
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
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Health Care Quality and Safety
Consumer Publications from AHRQ
The following publications are part of AHRQ's health care quality materials, which include Spanish translations:
20 Tips to Help Prevent Medical Errors鈥擯ractical tips and questions to ask
Go to: http://www.ahrq.gov/questions/resources/20-tips.html
大象视频Pub. No. 00-P038
Five Steps to Safer Health Care鈥擲horter version of 20 Tips
Go to:
大象视频Pub. No. 04-M005 (Feb. 2004)
Taking Care of Myself: A Guide for When I Leave the Hospital
Go to: http://www.ahrq.gov/questions/resources/going-home/index.html
大象视频Pub. No. Publication 10-0059 (April 2010)
Questions Are the Answer
Go to: http://www.ahrq.gov/questionsaretheanswer/
Select from topics:
- Talking with Your Clinician.
- Getting Medical Tests.
- Planning for Surgery.
- Getting a Prescription.
- Build Your Question List.
- Resources.
- Glossary.
